WHY LYME DISEASE IS SUCH A UNIQUE DISEASE (short answer)
Lyme Disease unique. It is VERY important to be diagnosed quickly if you are bitten by a Bb (Burrelia Burdorferi=Lyme) infected tick. If you go on the proper antibiotics within the first couple of months, they will get rid of any Bb or co-infections, but once they get a foothold, they are very difficult to get rid of.Unfortunately, very few doctors are what we call “Lyme Literate Doctors” or LLMDs. They are NOT educated to recognize the early symptoms, and many of them will not even recognize the tell tale “bull’s eye” or Erythema chronicum migrans (EM) rash that a small percentage of infected people get in the earliest stages of the infection. (This rash GUARANTEES without ANY further testing that the cause is Bb, and can be immediately and quickly treated with antibiotics and eradicated usually withing three to six weeks.)
Other doctors that have a bit of knowledge of the disease are taught that unless the rash is present, the person does not have LD (Lyme Disease). This is what is presently claimed on the Wikipedia website, is absolutely false, and it is my opinion that the truth is being deliberately suppressed and withheld from doctors. The more this disease is studied by sound research, the lower the percentage goes for those LD infected patients who display the EM rash.
In Canada, it is more likely to pick up Lyme Disease in southern Ontario and east than it is to get it here in Gibsons, BC, but it is possible to get it virtually anywhere in Canada that birds fly or pets move on vacation. The BCCDC has posted warnings here since 2006, but the greatest occurrence of Lyme in Canada is in Ontario and east. Something like 50% of the ticks collected in New York state up at the Canada-US border are infected, meaning they must be virtually the same in Canada in that area.
Bb (Burrelia Burgdorfori or Lyme) is a very unique and intriguing spirochete. It has no ordinary protein cell walls, but has a perimeter of fatty acids, then cilia that help it move, then another layer of fatty acids. It is not understood how the cilia can propel it inside these layers.
It also is a spirochete, or spiral shaped, which, along with its unusual fatty acid, rather than protein “casing” gives it the ability to move through the walls of blood vessels into surrounding tissue, organs, and even into the spinal column and eventually the brain.
Once in the tissue and organs, many of the spirochetes become indefinitely dormant, forming cysts. This continues as long as the blood is loaded with active Bb.
Once antibiotic therapy is begun, the active Bb in the blood stream are killed off. If they are completely killed off, you begin to feel well, again. The first thing you notice is a return of some of your energy.
Then, however, once the therapy terminates, some of the cysts reactivate, reenter the blood stream, and the process begins again. This is one of the reasons it takes so long to cure someone who has been sick for a while. All the cysts must be eradicated to have a full cure.
Another recent discovery (within the last five years) is something called a “biofilm.” This is an incredibly intriguing shield that the bacteria form right in the blood vessels when attacked by antibodies or antibiotics. The Bb bacteria form colonies on the sides of the blood vessels, and produce a film over these colonies that shields them from antibodies and antibiotics.
Certain antibiotics can penetrate the biofilm, but they are destroyed in the process. This is why it is usually necessary to treat Lyme disease with multiple antibiotics if it is not caught in the first month or so.
I am also on several non antibiotic extracts that have been shown to attack both the cyst coatings and this biofilm. These products are easier on the body than antibiotics, but I am still presently on three antibiotics in very high doses. It is imperative to go for regular liver tests when on antibiotic therapy like this, and also to take a very strong probiotic (not “over-the-counter.” I buy a very specific brand online.)
I have done a LOT of research on this disease in the last 4 + years, so if you or anyone you know is suffering from this disease, or even a mysterious, multi-symptom chronic condition, contact me via FB or email. It’s very likely that I have the information you need to at least get started in the right direction. Also, pass this on to your own health care provider. Doctors want to see people get well, but they are generally very under-educated on this disease.
Lyme Disease is still unique. Unfortunately, one of the things that is still mysteriously and miserably unique about Lyme Disease is that it is still misdiagnosed, said to only exist in certain places, and still claimed to be fully researched and dealt with by the IDSA. THAT IS NOT TRUE. To make such a claim in the face of the overwhelming body of good science available today is to be either criminally negligent (Surely the IDSA keeps up with science) or bald-faced liars (which I believe is the case.)
Something is keeping the truth suppressed, even though it is supported by an absolute wealth of good science. The very unfortunate fallout from this is people like myself, who cannot get insurance to cover our expenses and must pay for our doctors and medicine out of our own pockets, and perhaps even more tragically, people who have another mysterious illness who are self-diagnosing and going on black market antibiotics at great risk to their health.
WHAT CAN WE DO?
First of all, stay alive! Sadly, far too many people with chronic Lyme Disease are committing suicide. That is a fact and it’s the wrong choice. We may be going through hell at times, but we are one of the best possibilities for the next generation not to have to. The longer each one of us fights to get well, the more opportunity there is for medical practitioners to learn.
Secondly, talk to doctors, nurses and anyone else in the medical community that you can. Some will listen, even though their own professional societies have told them the problem does not exist.
Blog about your experience. Tweet about it. Post on Facebook and any other social media you can. Talk to your local radio and television stations. Contact your political representatives. Education is a huge part of the puzzle. When enough people finally understand that this is a real, scientifically proven problem that needs to be dealt with, the research dollars will begin to be unlocked and doctors will begin to be able to start treating people without fear of censure.
Even better, when it is finally understood by the medical profession that this disease can hit people virtually anywhere, and that it can usually be cured quickly and thoroughly if it is caught in the early, acute stage, doctors, most of whom WANT to cure people, will learn how to recognize and diagnose the disease, which is likely the biggest step there is in eliminating chronic Lyme Disease altogether.